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If you asked me what's one of the toughest things in the world?

I'd say being disabled and being dependent on other people most of the time. I wish I wasn't this way but it is what it is. I can't just wish it away.

So my mom is helping me sleep and when I ask her to tuck in the blankets to keep the warmth in since it's winter time she tell me looking after me is so exhausting. I know she's tired after a day at work but I have a metal plate on my neck that gets really painful when I get too cold so I have to keep warm at all times but she doesn't understand that though I've explained this to her over and over again. She says I'm too demanding and it always hurts coming from her. She was complaining saying I've asked for her to do a lot of things for me since she came home but who else was I supposed to ask when it was just me and her. Maybe I'm too demanding just like she said.


I just want to be free from these chains of disability so I don't have to bother anybody ever again and the only way out seems to be death. I'm not saying this so people can feel sorry for me but it seems like the easy way out. If it's bothering my mother this much who else can put up with it. Maybe I can finally find rest on the other side because living this way is really hard. No independence and I'm always worried what's going to happen to me if my parents died. The future looks really dark and I never want to face it. I just want all the suffering to end. Maybe I should find a way to separate my body and soul because I don't want to do this anymore. I'm just tired.
Mindful · 56-60, F
I don’t know what to say. But I feel I must share this at the risk of sounding crazy : There is positive energy and negative energy all around you. Call it what you like it’s there. Ask God, ask Karma, Buddha, your ancestors spirits, whoever you beilieve in —for energy— to give your mom strength and hope and love. And of course ask the same for yourself. Every chance you get grasp for energy from the very air itself. Pull positive energy to your heart and mind. It is a form of meditation and prayer. You will be surprised! Scientifically, life’s energy is around you. We just can’t see it. Ask for good things. I too will hope for better things for you. But do it for yourself. & Try not to forget to do this often.
Gusman · 61-69, M
In the 12 months I have been on SW, this is the saddest post I have read.
So sorry for your predicament. I have often said to myself that being totally dependent on others would be soul destroying and I would not want to continue under those conditions.
I am not going to sugar coat my response. What purpose would that serve? Tears well up when I read stories such as yours because there is no way to change your current situation.
Now,maybe the next person to respond may be more positive and upbeat and may raise your spirits temporarily, I simply can not find a positive here. I feel for your Mother as well. Must be so hard being a full time carer.

 
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