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What would you do if you had a undiagnosed condition with constant 24/7 leg pain, twitching, and like you can't stand? It's been going on a YEAR, no relief. No med helps. It is my sister who is experiencing this. She feels now almost a mental breakdown from having NO doctor help her. The pain never stops, and she feels PTSD, depression, depersonalization, and almost catatonic now. She cannot decide what she can or cannot do minute to minute. She feels a vegetable and 'can't take it' anymore :/ She has been in two psych wards b/c she wanted to end her life, but the stay didn't help. (they only 'monitor' you for a bit) Is this an Emergency? Doctors have said 'I don't know what to say.' o.O I find it so SAD they can't even get a team for her to figure out WHAT this pain is??? All neurological tests have been negative. Not sure what to do from here on now. It is heartbreaking watching her cry , and be beyond depressed from this condition.
36-40, F
40 replies
May 19, 2019
Edited: 1 yr ago
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Gusman · 56-60, MVIP
Write to a News Reporter stating her case. Happens here. If someone is being done wrong by then getting a Reporter on side always helps.
Not a Letter to the Editor but an individual Reporter you can meet.
You should be able to convince that person there is a genuine problem so it may lead to meaningful help.
No one likes negative press.
Coralmist · 36-40, F
[@546016,Gusman] That's an interesting point, thanks Gusman 💙
Gusman · 56-60, MVIP
[@562099,Seastar] It does work here in Australia. Often see people with predicaments going to the press and a substantial story being done.
Leading to a positive outcome. At least getting some meaningful help.
Wish you and your sister well.
Coralmist · 36-40, F
[@546016,Gusman] I appreciate that so much *hugggg*

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