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I Have Epilepsy

As some of you know, I have been through several tests since October 2017 up at Stanford Hospital to find out more information about my epileptic seizures.

On Wednesday, the 26th, I went to meet the doctor I originally met with in August. This is the first time I’ve seen him since that appointment. He walked us through the results of all the tests, one by one, which was very helpful in understanding just what happened and why those tests were taken.

What they found was a scar on the left side of the brain, also the seizures were initiated on that side. Cannot say for sure that the scar was the sole reason for the seizures, but it may have part to do with some of them.

We also discussed the options available. He is afraid of doing the laser surgery, as it can cause memory loss, which is one thing I am already dealing with, and he doesn’t want to make that any worse. He reached into his chest pocket and pulled out a chip, a little bit bigger than a quarter. The shape of it reminded me of a hearing aid. This is something they install with surgery, and can add wires if need be to place in certain areas that may trigger the seizures. The wires basically understand d the warnings and put a stop to them before the seizures actually start.

For the time being, he has change the doses of my two medications that I take specifically for my epilepsy. In the meantime, he will discuss my case at the Epilepsy Surgeons Conference and see if he can get some feed back from other surgeons who deal with others like me. We will meet again in four months, unless he calls me prior. He will assess how I am doing with the new medication doses, and we will again discuss the surgery.

After the forty years that I have been having seizures, my feelings are positive. I feel like I finally can beat this.
rckt148 · 61-69, M
Prayers with you
For me nothing was more validating as someone finally doing the proper tests on me and stop sending me to shrinks and calling me a liar
My pain problems are skeletal ,but now they take note
But it only makes me more angry for them to keep saying
"Had we just caught this sooner we could have saved you so much pain "
I am glad to hear they are trying to help you
So many of us Vets have been swept under the carpet
silentwriter180 · 51-55, F
@rckt148 And I hate that!! I know several Vets, including two family members who aren't getting the care they need and it just rubs me raw. With everything you guys do for us, you should be treated, even better than me.
rckt148 · 61-69, M
@silentwriter180 I won't say that ,but as least as good as an ex con
silentwriter180 · 51-55, F
*sigh*
itsoeasy · 56-60, M
my customer ahd parkinson s and had a similar thing attached to his brain with wires, and his tremors stopped, amazing, he walks unaided now, so maybe their idea would work
SW-User
Best of luck🤗
Unanimous in the cause to see you healed; your victory, is our's.

Twilight sets, on a lifetime of siege.

One step closer to horizons, bright and free.
Without torment, devoid of pain.


In gratitude, we stand.



Congratulations.
You can Cricket ... you can

Have prayed for medical info ... it is happening.

Be patient

Allow yourself some joy!
Peaches · F
Oh, this is great news!🤗 I'm sending healing prayers your way, 🙏🏼😇I just KNOW you can beat this.
jenmil · 22-25, F
Good luck to you. Thanks for explaining
SW-User
Hope it works out well for you

 
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