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An epilepsy update.

This follows on from my original epilepsy post about our son Patrick, first of all I would like to thank you all for the input and advice, it enabled us to determine the type of epilepsy and exactly what his trigger is, in total Patrick had six seizures in four months, the last being in March, by then we'd figured out what we needed to do and made the necessary lifestyle changes, all this was thanks to you guys, we knew nothing about epilepsy and help from the NHS was not available until July and he has only just now (16 October) started on anti epilepsy drugs.
He's handled the whole situation very well, way better than I imagined he would.
1pebbles · 56-60, F
I’m so sorry to hear of this disorder. Please get him obviously the lowest possible dose. I had a TBI (traumatic brain injury) resulting from a head on collision 30+ years ago. Suspected seizure activity, doctors put me on seizure meds to cover their arses! They screw up your thinking as they are meant to disrupt brain electrical impulses. As he’s 16, he may grow out of it, needs to be seizure free for two years.
Johnblackthorn · 56-60, M
@1pebbles thanks, he's on 100mg of tegratol twice a day for two weeks then 200mg after twice a day after that which fortunately is the lowest dose.
1pebbles · 56-60, F
@Johnblackthorn i was on tegratol, not as many side effects as Dilantin, but I still couldn’t put two thoughts together
Johnblackthorn · 56-60, M
@1pebbles we'll keep an eye out for changes, luckily we are a close nit family so anything untoward will be spotted.

 
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